It almost exclusively affects girls. Boys with Rett Syndrome usually die within the first year

It is the most physically disabling of the disorders on the autism scale.

Children born with Rett Syndrome appear to develop normally for the first year of their lives before regression occurs.

Every 90 minutes a girl is born with Rett Syndrome.

It is not hereditary. It can occur in any family at any time.

Rett Syndrome is usually caused by a mutation of the MECP2 gene on the X chromosome.

50% of sufferers will be able to walk by adulthood. Most will not speak. Most will suffer epilepsy, anxiety, chronic spinal curvature, breathing and feeding difficulties.

rett syndrome has the potential to be the world’s first curable brain disorder.